Hi. My name is Desarae and I am a 25 year old mother
of 2 wonderful little boys. My oldest, Drake is three years old and
his little brother is Dante, who is 15 mos old.
I first found out that I had herpes 7 months after I
got married. I did not contract the virus from my spouse. It was a
very devastating time in my life to find out that I had contracted
an STD as I was not a promiscuous teen. When I got married I had
only been with 3 other men.
Right before I was diagnosed my husband and I had
decided to try and have a baby once he got home from being overseas.
When I found out that I had
herpes in Dec of 1999 I thought that I would not be able to
have children because of this, but through some diligent research
and consultations with health care professionals I found out that I
could have children. There were just a few extra precautions that
had to be taken during the pregnancy and at time of delivery.
I have been very open about having herpes since I found out
about it. My first child was born without problems and is happy and
healthy. Unfortunately my second child was not so lucky. At the end
of my 6th month of pregnancy with Dante I suffered from the most
severe outbreak that I had ever had and Dante contracted the herpes virus from me. The
Doctor's cannot say for sure if that was when the virus was
transmitted from me to the baby but I feel that was when it
happened.
Luckily being as open about it as I was is what saved
my baby's life. The delivery was normal and no sign of lesions and I
had been on medication to help prevent any outbreaks as my due date
closed in. When Dante was 24 days old I was awakened in the middle
of the night by my older son crying and that is when I realized that
there was something wrong with Dante. After we called 911 and had
been taken to the Emergency Room, the first words out of my mouth to
the ER staff was that I had
Genital Herpes and they decided to start IV antibiotics for
the virus just to cover all the bases since they did not know what
was wrong with him and had to wait for test results to come back and
cultures to grow. After two long stressful days in ICU the test
results came back positive for the herpes virus.
The Doctor's were very reassuring to me, making sure
that I knew it was not my fault that this had happened and that it
was extremely rare for this to happen in the first place. Dante
spent 21 days in the hospital getting IV antibiotics. He has not had
an outbreak as of yet but the doctors say that he can and that it
could occur
anywhere on his body.
He was officially diagnosed with Neonatal HSV
Meningoencephalitis. This caused moderate brain damage to Dante. His
basal ganglia is dead and the part of the brain that controls short
term memory is also dead, there is a band of damaged brain tissue
that goes from one side of the brain to the other that controls his
motor skills. He is 15 mos old currently and has the development of
a 5 month old infant. He does not sit up, crawl or hold his own
bottle. He has just gotten full ability to support his head which
will start the process of getting sitting and other muscles
strengthened.
When Dante was nine months old, the doctor's felt
confident enough to change Dante's diagnosis to level four mixed
tone Cerebral Palsy. This kind of diagnosis is generally not made
until a child is around 18 months or older but Dante was already
exhibiting severe signs of Cerebral Palsy. He currently gets
Occupational Therapy and Physical Therapy every week along with a
home therapist visit once a week too.
For those parents out there with children like my
Dante please don't give up hope and keep supporting your children.
Anything is possible. I just wanted to share my
story with you all in hopes of bringing hope into someone else's
life. Please keep in mind that transmitting this virus to an unborn
child is extremely rare 1 in 3000-5000 women with HSV will pass it on to
the child.
Please know for any of you parents out there in a
similar situation that there are others out there going through what
you are going through or what you have gone through. My hope is to
someday look online or anywhere for support for parents like me and
find a support group that is dedicated to mothers that have passed
this virus onto their child. -
Desarae